"Fear not, for I have redeemed you; I have summoned you by name; you are mine." Isaiah 43:1
My big girl!!!
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I can't believe that my baby girl just turned seven years old today!! She has come so far and is amazing!!! Happy Birthday ab!!! Mommy loves you so very much!!
We got to go to church today. We haven't been in MONTHS! It's super hard to pack us up and go places and the weekends are when we are wiped because we have been on the go like crazy through the week with appointments, my therapies, school, etc. But I was blessed to be there today. For those needing a church, especially if you have special needs in your home, Whosoever ministries in Fountain City is a fantastic church home. It starts at 2 p.m. on Sundays and 7 p.m. on Tuesdays. Now... back to where I was. Today, Denver (the pastor) was talking about final words and listening to people to get a better understanding of who they really are. It got me to really thinking! So many times, I wonder what people hear from me when they listen... then it made me think... our words are a powerful thing in our lives! Words can bring hope... words can dash hope! Words can bring joy but equally bring sorry. Words can build up or tear down... ...
My life has taken a sudden change... everything I once knew... it feels I no longer know. I was admitted 2 1/2 weeks ago because of my aspiration issues and a Peg tube (feeding tube) was placed in my abdomen. I went in with the understanding this was going to be supplemental... and I came out learning this was it... This was my sole nutrition.... The words NPO indefinitely were written in bold letters across the note from my surgeon and team of doctors (NPO meaning... nothing by mouth). You don't realize how big that word Indefinite is... until it's placed on something major in your life. This has been a hard road. I have put on my bravest most strongest face I can... but there are moments... daily moments... I find myself broken... I feel so much better now with my health that it makes it all worthwhile but for me... for many... food is social! We get together and we eat.... we have parties and we eat... we have victories and we eat... we go on dat...
I don't know about you, but my kids are really into frozen right now. I hear the songs over and over. I hear them quoting the movie and I have to admit, if the movie isn't turned on at least once a day, I fear something is INCREDIBLY wrong within my home! Today, I was feeling quite thoughtful! I get that way often and I usually don't voice my thoughts outside of the realms of my home as much as I'd like! I know... SHOCKING! I have lots more to say than I really say! My thoughts here lately have been jumbled with LOADS of emotions... I heard someone sharing the other day how special needs families... families living with chronic illness often begin to feel secluded. They see their friends pull back... for many reasons! Sometimes it's because they're overwhelmed, sometimes because they don't understand, sometimes because they can't deal with trying to work around all the "needs" you have to accommodate just to walk out of your door......
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